AIDS Drug Assitance Program
ACT UP/East Bay
DISCLAIMER NOTICE: This Zap has NOT (if at all) been discussed by ACT UP/New York and consequently is not endorsed by AU/NY at this time. There is some discussion to be had as to drug pricing regarding mandates to pay anything to the drug company pimps.... _Nevertheless, this is posted for your information.
The two articles below from the Kansas City Star &
tell the terrible story all too well...
Missouri to hold lottery to dispense AIDS drugs
AIDS funding did well in Congress, but activists are deeply divided over how the money will be split.
The fight is between lobbyists for the AIDS Drug Assistance Program Working Group and the Care Coalition, a group of cities recieving money through the Ryan White Care Act.
ADAP proponents say they went to House Appropriations subcommittee Chairman John Porter, R-Ill, and asked him for $100 million for ADAP, a program that is struggling because of the huge cost of the new anti-protease drugs.
Their request was followed by a letter to Porter from Rep. Nancy Pelosi, D-S.F., in support of ADAP.
The Care Coalition, also lobbying for funds, was unhappy that all the money was earmarked for ADAP. It faxed a Sept. 24 "Action ALert" to its allies, urging them to ask Pelose to spread the money more widely -- in particular, the the Care programs.
The final appropriation is now split: half to ADAP, half to Care programs.
The Care Coalition's Ernest Hopkins, satisfied with the out-come, asserts that "a person without a home, or food, or transportation to and from the doctor is often unable to focus on being compliant to combination drug regimans."
But supporters of ADAP -- including Project Inform, the Republican Log Cabin Club of San Francisco, the National AIDS Treatment Advocacy Project and athe International Association of Physicians for AIDS Care -- say the money was wrongfully diverted.
"Without access to drug therapy, other services are not meaningful," said Jules Levin of the Treatment Advocacy Project. "I was appalled by the last-minute maneuvering by a few AIDS community lobbyists who managed to take away $50 million of our money in the dead of the night, after we worked so very hard.
In an angry letter to Pelosi, Gordon Nary, president of the International Association of Physicians in AIDS Care, predicted: "The results of the reallocation will undoubtedly lead to more unnecessary suffering and death."
ACT UP/East Bay
Oakland, CA 94608
Sign-On Letter to Reduce the Cost of Pharmaceuticals
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